WE from “we demand research” are seriously ill people who have made it their goal to support research funding projects and the treatment of #MEcfs.
We are ME/CFS sufferers who are mostly bedridden and no longer able to leave the house. We are trying with the last bit of strength to use social networks to draw attention to this devastating disease, which has been ignored by the state. Most of us don’t have medical care. When the pandemic began almost 2 years ago, we had been in a painful lockdown for years. As it became more and more popular that a large number of those affected by Covid infection suffer from long-term consequences and are also developing the full picture of MEcfs, we had only one hope in this tragedy: research and treatment. Unfortunately that didn’t happen.
Mrs. PD Dr. Dr. Bettina Hohberger would like to change that. When the first Long-Covid patients with symptoms identical to those with MEcfs were successfully treated with the BC007 drug from Berlin Cures in Erlangen, it was clear to us: We also need a therapy study for MEcfs with BC007.
That is why we support this call as best we can get out of our beds, and WE are wholeheartedly grateful to Alexander Graef and his association Brückeverbindet e.V. for doing this for us.
The list of profiles is not equivalent to the people who work in the organization.